Sleepless Theatre Company to showcase new play about endometriosis: Baby Box.

Exciting news update dear readers… Sleepless Theatre Company have written and produced a play about endometriosis called Baby Box, which will be performed at The Kings Head Theatre in London from 1st to 6th May 2018 as part of their feminist theatre season.

The play explores issues of sexuality and menstrual health through the eyes of two sisters as they navigate their way through childhood to the cusp of motherhood.

Playwright Laura McGrady has endometriosis herself. She explained: ”I’ve essentially written the play I needed to see a year ago but couldn’t find. 1 in10 women suffer from endometriosis and so few people seem to really know about it, so of course I hope Baby Box will shed a little light on the subject and maybe help support some women suffering. However, despite the themes within it, Baby Box is above all about the relationship between two sisters. I love these two characters and their journey together, I think it’s a familiar dynamic and I know this play will speak to anyone who has ever loved someone unconditionally – it really is that simple.”

I am really excited to hear about this new play, and can’t wait to watch it live. We know that endometriosis can be a bloody, unglamorous, and debilitating disease which is very much still a taboo subject- so kudos to the entire team for tackling this subject on head on. I have noticed with frustration that narratives and representations about endometriosis have largely been absent from the creative arts- from poetry and theatre through to TV and film. This represents a missed opportunity to tell our stories and highlight why they matter to the wider public. It will be amazing and emotional I am sure to see some of the issues I have experienced throughout my 18 year battle with endometriosis reflected on stage.

***EXCLUSIVE DISCOUNT OFFER***: Tickets for the performance are priced between £15 and £18. The Endo The World? readers can use the code BabyBoxEndo to buy tickets at the discounted price of £12! Tickets can be purchased here.

You can check out Sleepless Theatre Company on social media for additional information and updates: Twitter (@SleeplessTC), Instagram (@sleeplesstc), and Facebook (here).

For more information about endometriosis, please visit the Endometriosis UK website.

I hope that lots of you are able to go along and support this performance- it sounds amazing. Let me know your thoughts if you are able to attend- I’m sure readers at this site from around the world who are unable to be there would appreciate any reviews and feedback.

With love,

I am doing the Pink Pants X London Challenge to raise funds for Endometriosis UK.

Through a possibly misguided combination of enthusiasm and insanity, on the 1st October I (along with two lovely friends my my local support group) will be walking 23 miles/ 37 kilometers across London for the Pink Pants X London Challenge to raise awareness of endometriosis and some funds for Endometriosis UK.

I’m slightly worried about how epic this challenge will be. As my husband put it: ”So, thee girls with chronic fatigue are going to walk 23 miles? OK then!” But I am determined to do it, and nothing stops me when I have made up my mind about something.

Endometriosis UK are an incredible charity, and they have given so much life changing support to me and other women with the disease. Between us, without the information and support that Endometriosis UK have provided me with since my diagnosis, I am not totally sure I’d still be here today. Their work inspired me to become one of their volunteer advocates, so I can help other women facing the many challenges that this disease can bring.

Just Giving
If you like this blog or have used Endometriosis UK services yourself I’m really hoping you might be able to donate to our fundraising page, to help us to meet our target! I would really appreciate anything you might be able to spare for this great cause. You can donate if you’re outside of the UK too.

Thanks for your support! If you want to follow us on Twitter the 1st October you can do so by using the hashtag #GoTeamHerts. If any of you have tips for walking such a long distance, I would love to hear them!


It’s two days until my excision surgery- scared much?!

It’s just two days to go until my excision surgery at UCLH! I’m hopeful that the surgery is going to give me some relief and restore some quality of life. Unfortunately this means that tomorrow is the dreaded bowel prep day *sob*.  Having undertaken one before I know what a miserable experience it is.

bowel prep
There are so many conflicting thoughts and emotions rushing through my head at the moment, and everything just feels a bit difficult. It really isn’t easy to be an endo warrior. I never knew it was possible for my brain to be so busy. It is constantly like: Will this work? How much will it hurt? Will they tell me I’ll never have a child? I don’t want to die! I’m not going to die-don’t be stupid! What if the anesthetic doesn’t work? What if they bowel prep doesn’t work? What if you end up with a colostomy? Hey, it’s all worth it in the end if I start feeling better! But what IF I don’t feel better? And so on…

Despite all this ruminating I’m actually feeling quite numb overall and just want to get this whole ordeal over with. It seems that the terror/ excitement / anticipation are all counterbalancing each other.

I’ve also made the big/stupid/brave decision to take some time out of my PhD to get my head and body back into working order again. I won’t return to the office until January, and I am really grateful that I have this opportunity to just relax and focus on myself for once. No more pretending everything is OK. I know I’m lucky to be able to take a break, as this isn’t an option for so many people living with chronic illnesses who desperately need it.

So, I’m off now, but plan to post an update about my surgery experience as soon as I am well enough. Do take care of yourselves in the meantime! 🙂